2018 Regional Patient and Caregiver Support Conference

2018 MSANJ Regional

Patient and Caregiver

Support Conference

Saturday, March 24, 2018

Being held at

Brookdale Community College

Content on this website is property of MSANJ. Distribution of these materials is strictly prohibited without express written consent of MSANJ. Violators will be prosecuted to the fullest extent of the law.

Join other families living with Multiple System Atrophy. Learn about the disease, management and coping, as well as current research and trials. Participants will have the opportunity to ask questions of medical providers from leading health facilities who have experience working with MSA patients, and to meet others dealing with life with MSA.

Featured Speakers

Amy Colcher, MD

Director, Movement Disorders Program, Cooper University Hospital

Dr. Colcher will address self-management, mindfulness, the importance of a team, and education in MSA care.

Callum M. Dupré, MD

Lead Physician and Sleep Center Medical Director, Capital Health Systen

Dr. Dupree will discuss not only what sleep disorders are present in the MSA population, but also what can be done about them.

Lucy Norcliffe-Kaufmann, PhD

Assistant Professor in Neurology and Neuroscience at New York University School of Medicine

Dr. Norcliffe-Kaufmann will provide a report on MSA research, fresh from the 6^th International MSA Congress held for the first time in the United States, in New York City March 1 – 3.

There will be additional presentations on various support services, exhibits, and other resources.

Admission is free and includes a continental breakfast and lunch.

Videos

“Living With MSA Amy Colcher,

“Sleep Dysfunction in Multiple System Atrophy — Callum M Dupré, MD”

“Medical Panel Q & A Amy Colcher, MD Callum M Dupré, MD”

“Clinical Research Update — Lucy Norcliffe Kaufmann, PhD””]

“Toolbox Kit Self Management & Prevention — Victoria Pena Cardinali, MSW, LCSW”

“MSAC Advocacy Updates“

“MSANJ MSA Advocacy“

Event Program

Downoad PDF

Presentations

These files are property of MSANJ. Distribution of these materials is strictly prohibited without express written consent of MSANJ. Violators will be prosecuted to the fullest extent of the law.

Living with MSA

Hot Topics from a Therapeutic Perspective

Sleep Dysfunction in Multiple System Atrophy

MSA Tool Box Kit

Support Conference Evaluation

Prior Conference Feedback

I just wanted to let you know how impressed my sister and parents and I were with the MSA conference. The room was comfortable, the food was much appreciated, and best of all, the speakers provided clear, up-to-date information that is hard to find anywhere else! The vendors provided useful information, too. Throughout the day, it was clear that everyone involved in setting up the conference, and those who presented, all care very much for people with MSA and their families and care-givers. We were moved by your family’s love for your mother and dedication to the cause of finding a cure for MSA. Thank you so very much for all you to do to offer support to families like ours. ~ Christa Tinari (Caregiver)

Many thanks to you and the team for a great conference. My favorite part was meeting and talking with the other folks with MSA and their caregivers. This was my first MSA gathering and it was reassuring as well as informative to meet others in the same boat.” ~ Rick Stevens (Patient)

Conference Schedule

9:00 a.m. – 9:30 a.m.

Registration and Breakfast
Mix & Mingle
Exhibits

9:30 a.m. – 11:00 a.m.

Welcome & Medical Presentations

Living with MSA—Amy Colcher, MD

Sleep Dysfunction in Multiple System Atrophy —Callum Dupre, MD

11::00 a.m. – 11:15 a.m.

Break/Exhibits

11:15 a.m. – 12:30 p.m.

Medical Panel Q & A

12:30 p.m. – 1:30 p.m.

Lunch
Exhibits & Chair Massage

1:30 p.m. – 1:45 p.m.

Hot Topics: From a Therapeutic Perspective – Joellyn Fox, DPT
Remote Presentation

1:45 p.m. – 2:45 p.m.

Clinical Research Update — Lucy Norcliffe-Kaufmann, PhD

2:45 p.m. – 3:00 p.m.

MSA Advocacy Updates

3:00 p.m. – 3:15 p.m.

Break/Exhibits

3:15 p.m. – 4:15 p.m.

Toolbox Kit: Self-Management & Prevention — Victoria Pena-Cardinali, MSW, LCSW

4:15 p.m. – 5:00 p.m.

Support Group Meeting – Facilitators: Victoria Pena-Cardinali & Cynthia Roemer

Become a Conference Sponsor

Click Here to Learn about Sponsorship Opportunities

Donations

MSA NJ is a completely volunteer organization. We rely on donations to support our efforts, such as this conference. If you would like to support our work, please consider a donation. Any amount, no matter how small helps. Thank you.

Click here to make a donation online.

Sponsors

Platinum Sponsor

Gold Sponsor

Exhibits

*Accomplished Brain

*Lundbeck LLC

*Mobility Works—Wall Township, NJ

Monmouth County Division on Aging

MSA Coalition

NJ Hospice & Palliative Care Organization

*Theravance Biopharma

*Tobii Dynavox

Kick Back & Relax— Barbara Rodgers, NJ Licensed Massage Therapist

Available Lunch throughout the afternoon.

*Conference Sponsor

Hotels

Courtyard by Marriott (approx. 1.9 miles from campus – Brookdale discount)
245 Half Mile Road, Red Bank, NJ 07701
732-530- 5552 Website

Extended Stay America (approximately 2.1 miles from campus)
329 Newman Springs Rd, Red Bank, NJ 07701
732-450- 8688 Website

Oyster Point Hotel (approximately 3.8 miles from campus)
146 Bodman Place, Red Bank, NJ 07701
732-530- 8200 Website

Molly Pitcher Inn (approximately 3.9 miles from campus)
88 Riverside Avenue, Red Bank, NJ 07701
732-747- 2500 Website

Comfort Inn (approx. 4.2 miles from campus)
750 Highway 35 South, Middletown, NJ 07748
732-671- 3400 Website

Colts Neck Inn (approx. 4.9 miles from campus)
6 County Road 537 W at Rte #34, Colts Neck, NJ 07722
(732) 462-0383 Website

Courtyard by Marriott Tinton Falls (approx. 5.1 miles from campus)
600 Hope Rd, Tinton Falls, NJ 07724
(732) 389-2100 Website

Residence Inn by Marriott (approx.. 5.1 miles from campus)
90 Park Rd, Tinton Falls, NJ 07724
(732) 389-8100 Website

Holiday Inn Tinton Falls (approx. 5.3 miles from campus)
700 Hope Road, Tinton Falls, NJ 07724
(732) 544-9300 Website

Red Roof Inn Tinton Falls (approx. 5.4 miles from campus)
11 Center Plaza, Tinton Falls, NJ 07724
(732) 389-4509 Website

Sheraton Eatontown (approx. 8.5 miles from campus)
6 Industrial Way E, Eatontown, NJ 07724
(732) 542-6500 Website

Disclaimer

MSA NJ is pleased to provide this valuable information as presented by professionals in their fields. However, it is not intended to replace your medical treatment. Please speak to your own physicians about any information you gained in viewing these presentations.